Ava Knapp
Age: 5 years old
Career: I start kindergarten next year
When did you cease using topical steroids: January 16, 2016
What type did you use: All kinds but chlobetasol foam .05% is the last one I used.
What is your favorite product for comfort? Homemade zinc cream and Dead Sea salt baths
What is the hardest thing to deal with during this condition? The burning and itching has been the hardest part. I really didn’t like all the skin I found in my bed. I’ve lost a lot of hair and some fingernails along the way, too.
What is the first thing you will do when healed? Wear dresses and sandals comfortably!! I also want to take a dance class again and be able to wear the recital outfit without having a reaction this time.
Christine Lozano
Age: 26
Career: Marriage & Family Therapist
When did you cease using topical steroids: June 15, 2016
What type did you use: Not sure exact names of topicals, but many different creams/ointments of various strengths. Most recently used oral steroids (Prednisone) April-June 2016 (for 8 weeks)
What is your favorite product for comfort? Zinc cream. Many natural supplements prescribed from my wonderful naturopthic doctor.
What is the hardest thing to deal with during this condition? There are absolutely no words that could describe the physical, mental, and emotional pain of this journey. Every single day-to-day activity became an excruciatingly painful moment.
What is the first thing you will do when healed? I wouldn’t consider myself healed, but I’m in the process! When I am healed, I will exercise, sweat, take a completely pain-free shower, and smile.
Preventable: Protecting Our Largest Organ 