Career: ESL teacher and currently studying a Diploma in Holistic Nutrition
When did you cease using topical steroids: November 2014
What type did you use: Cortoderm, Clobetasol, Fluticasone, Hydrocortisone drops,Topiderm, Prednisone, hydrocortisone 0.5% and 1%
What is your favorite product for comfort? Irritable skin balm from Moo Goo and Edermaid face and body spray from Merry Clinic. and many supplements that helped my body during the process.
What is the hardest thing to deal with during this condition? The burning and never ending itchiness in the beginning was almost unbearable . Having to sweep and clean every place I went because of the dry and flaky skin. The emotional burden on me and my family. The 24/7 discomfort because of the irritation on my entire body was huge.
What is the first thing you will do when healed? Hug people, wear my clothes again and enjoy each day as never before.
James De Vuyst
Career: Unemployed due to TSW
When did you cease using topical steroids: July 4th 2016
What type did you use: I used so many different types of TS including Elocom and Dermovate which I’m pretty sure are the strongest ones. I used them for about 3 years.
What is your favorite product for comfort? Ice packs and Vaseline.
What is the hardest thing to deal with during this condition? The pain and extreme discomfort from the itching and inflammation have been torture. The length and unpredictability of Red Skin Syndrome are also tough to deal with.
What is the first thing you will do when healed? The first thing I’ll do once I’m healed is thank my family for helping me get through this awful process. I’m also going to thank everyone involved with ITSAN for spreading awareness of this mostly unrecognized condition. Without finding information about RSS online I probably would have lost my will to live.