Feature #14: Angelena & Naomi

angela-luck
Angelena Hope Luckeroth

Age: 28

Career: I was a server & and a guard at an art museum before I was forced by TSW to quit.  Went back to work at 5 months TSW in an entirely different capacity as a Personal Care Assistant & ceramic tilemaker.  Way less public positions.  I had to hid from the world for 5 months.  I felt subhuman, like a sewer mutant. With that said, embarking on TSW was the best thing I have ever done for myself and my health

When did you cease using topical steroids: Nov 11th 2015

What type did you use: Hydrocortisone 2.5 on face & neck. Triamincinolone full body, even on breasts

What is your favorite product for comfort? DSS (Dead Sea Salt) baths with a couple drops of Tea tree got me through the worst of it.  Spent SO MANY HOURS in the bathtub, sought refuge in the bathtub everyday.  I’m a MW (moisture-withdrawal) person so I never messed with creams & lotions much after embarking on TSW.

What is the hardest thing to deal with during this condition? TSW is crippling, it robs us of our precious time here on earth and alienates us from society.  I am a changed person forevermore.  I am humbled.  I feel like I have always had a great capacity for empathy and caring but this experience has brought me to a whole new level.

What is the first thing you will do when healed? I am going back to school to get my teaching license for Art k-12.  My skin condition (TSA) has ruled my life for far too long and I feel like once my withdrawal is complete I can move on with my life for the first time in YEARS.


Naomi Sarah Davies naomi

Age: 29

Career: Hospice Nursing Assistant

When did you cease using topical steroids: April 12th 2014

What type did you use: Dermovate, Betnovate, Elecon

What is your favorite product for comfort? Sudocrem (a UK zinc based cream) and tubigrip bandages

What is the hardest thing to deal with during this condition? The unrelenting severe pain and depression, not being able to mentally cope.

What is the first thing you will do when healed? I went on holiday and swam and got a tan!

Author: preventabledoc

Director/Producer of Preventable: Protecting Our Largest Organ and Red Skin Syndrome advocate

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