Paula Perris
Age: 30
Career: Mother, Wife, Health Care Assistant up until TSW. I was in collage studying social care.
When did you cease using topical steroids: 15th June 2016
What type did you use: Methotrexate, UV light theraphy (hand PUVA) prednisolone, Dermovate, Bethnovate, immuovate, fucibet, protopic, Elcon…
What is your favorite product for comfort? I always go back to silcock’s base but also use coconut oil, dipolbase, and cotton gloves.
What is the hardest thing to deal with during this condition? Not been able to touch my children without being in pain and the long sleeplessness nights.
What is the first thing you will do when healed? Take my children to the beach, hold their hands, LIVE and of course raise awareness!!
Jane Cavalla
Age: 43
Career: Art educator
When did you cease using topical steroids: March 2013
What type did you use: Mostly Betnovate RD, but have had orals and stronger ointments throughout my life. Injections as a baby!
What is your favorite product for comfort? My own homemade shea butter and jojoba butter balm
What is the hardest thing to deal with during this condition? Itching, itching deep bone itching! Severe dryness/elephant skin, lack of sleep, no life outside of TSW, impact on family and depression
What is the first thing you will do when healed? I am starting to have days of healing now, on good days – I can wear black! Wear make-up, go out with friends and enjoy my life again, be more present as a mother, and consider the possibility of meeting someone.
Preventable: Protecting Our Largest Organ 