Feature #22: Zuzana & Kara

zuzanaZuzana 

Age: 32

Career: Work at a help desk, but now on Maternity Leave (but may have had to quit due to TSW if it wasn’t for Maternity Leave)

When did you cease using topical steroids:  Sept. 17, 2016 (Previous tries — 10/15, 12/15, 3-6/16) Also ended Cyclo (an immunosuppressant) 300mg in January 2017

What type did you use: Dexa- and betamethasone ointments, Hydrocortisone and methylprednisolone shots, 1 round of oral steroids – Prednisone in 02/15

What is your favorite product for comfort? Vaseline + ichthamole and zinc oxide, tea tree oil for scalp, Probiotics, gluten and alcohol free diet. When I use the bath: Dead Sea salt, Epsom salt, ACV, tea tree oil, but now I just shortly shower

What is the hardest thing to deal with during this condition? Insomnia – the nights, hair loss, how itchy and oozy it is, being scratched to death and not being able to do anything about it, to care for my baby, to wear clothes – People thinking it us just a rash and telling me not to scratch – Being a burden to my family – Skin and smell is everywhere

What is the first thing you will do when healed? Take my daughter to the pool as she loves water and to swim, enjoy life again, live again and touch my dogs again.


Kara kara-headshot

Age: 38

Career: Attorney and COO

When did you cease using topical steroids: September 30, 2012

What type did you use: Cloderm

What was your favorite product for comfort? Dead sea salt baths, castor oil

What is the hardest thing to deal with during this condition? Disfigurement of my face and anxiety about seeing people, especially at work because I was a trial attorney at the time.

What was the first thing you did when you healed? I got dressed up, took off my glasses, and went out to a nice dinner at a winery with my boyfriend. A couple of months later I also cut off my hair, which I had been hiding behind during my recovery.

Author: preventabledoc

Director/Producer of Preventable: Protecting Our Largest Organ and Red Skin Syndrome advocate

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