Career: Unemployed, had to medically withdraw from school
When did you cease using topical steroids: July 2015
What type did you use: I used Triamcinolone 0.1% for 8 years, had a few rounds of oral steroids/shots of Kenalog
What is your favorite product for comfort? Lemongrass Balm and Frankincense
What is the hardest thing to deal with during this condition? The hardest part of TSW is the physical pain. There are days where I’m in so much pain that I can’t even think straight. The ooze is a close second though.
What is the first thing you will do when healed? First thing I’m doing is taking a trip somewhere fun and exciting. I’m not sure where yet, but I’m going to make sure to live it up and not to take life for granted. Oh, and I’m also gonna drink a margarita.
Career: Attorney and Dance Teacher
When did you cease using topical steroids: November 24, 2015
What type did you use: I used many different types, but the last two I was on were triamcinolone and clobetasol
What is your favorite product for comfort? 3 things: 1. White t-shirts- they’re great to wear around the house because they are loose and breathable and I also use them to wrap my arms or neck during flare-ups; 2. Benadryl to help me sleep during the unbearable itchy nights; 3. Aquaphor
What is the hardest thing to deal with during this condition? Sleepless nights dealing with the bone deep itch & trying to maintain as much of a normal life as possible
What is the first thing you will do when healed? Workout and take a pain free shower