Michelle Li
Age: 25
Career: Data Scientist
When did you cease using topical steroids: July 2015
What type did you use: Elocon in childhood, other hydrocortisone creams of various strengths for eczema around eyelids and lips, and immunosuppressants (elidel, protopic) in my teens.
What is your favorite product for comfort? A balm I make using shea butter, jojoba oil, cocoa butter, peppermint essential oil and eucalyptus essential oil. The essential oils are very cooling and help relieve the itch…sometimes.
What is the hardest thing to deal with during this condition? The hardest part about TSW is the roller coaster of flare-ups. Sometimes you think you’ve beat it, but another flare-up will come, in a different part of your body. It’s really hard to keep a positive attitude when that happens.
What is the first thing you will do when healed? I’m doing everything I want to be doing! I’ve made a big effort to keep chugging along, advancing in my career, traveling, and doing as much as I can without causing my body stress despite my flare-ups… But maybe, going camping and not having to worry about infections or having a good nights rest would be the first thing I do once I’m healed.
Laura Mathieson
Age: 29
Career: Unemployed due to TSW and anxiety
When did you cease using topical steroids: 28th May 2014
What type did you use: I only ever used steroids topically, these include Hydrocortisone, Betnovate, Fucidin H, Fucibet and Elocon. There are many more but I can’t remember them all. Other treatments I have tried include Traditional Chinese Medicine, hypnotherapy, UVB light treatment, homeopathy. I was still using steroids when trying these other therapies in the past.
What is your favorite product for comfort? At the start of withdrawal i used tubs and tubs of 50/50 ointment. Later I found Dead Sea Salt baths very soothing. I’d use zinc infused bandages when oozing. Later into TWS (about the 2 year mark) I started using Elaj, and I still use it to this day.
What is the hardest thing to deal with during this condition? The hardest part for me is the anxiety and depression; not wanting to be seen by anyone and shutting myself away from the world.
What is the first thing you will do when healed? The first thing I want to do when I’m healed from TSW is hold down a full time job long enough to save enough money to go travelling for a few months.
Preventable: Protecting Our Largest Organ 